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Patients Involved – Patient feedback on a plain language summary of results

Patient Engagement

Introduction Patients were asked by GlaxoSmithKline staff members to review a draft plain language summary from a completed Phase III study. The patients provided valuable feedback about the wording,...

Patients Involved – Using user research

Patient Engagement

Introduction Novo-Nordisk, a pharmaceutical company, does user research with patients to enhance understanding of patients and to develop products that meet users’ needs. Where in the process? – Phase...

Webinar: Creating Trainings with the EUPATI Toolbox

Medicines R&D

A recording of the EUPATI webinar entitled 'Creating Trainings with the EUPATI Toolbox'. In the first part of the webinar John Lenehan will present the usage statistics of the...

Interview with Virginie Hivert

Patient Engagement

Transcription So my name is Virginie Hivert, I’m working for EURORDIS, the European organisation for rare disease patients. I’m the Therapeutic Development Director, and so I’m a patient...

Patients Involved – DevelopAKUre for AKU

Patient Engagement

Introduction An example of public-private partnership from diverse international groups in industry (Sobi), patient organisations (AKU Society and ALCAP), hospitals (Royal Liverpool, Hospital Necker, and National Institute of Rheumatic...

Mini-course starter kit- Ethics Committee

Medicines R&D

The starter kits provide you with links to relevant background reading in the toolbox and associated PowerPoint slide decks and media in order to prepare a single or multi-day...

Webinar: Registries

Medicines R&D

Note: This webinar took place on 8 February 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction A patient registry is an organised...

Risk communication in medicines

Medicines R&D

Risk communication is a two-way exchange of information on the risks and benefits of a medicine. Patients, companies, and health authorities all have important roles to play in risk...

The concept of blinding in clinical trials

Medicines R&D

Blinding is a procedure in which one or more parties in a trial are kept unaware of which treatments participants have received during a clinical trial.

General toxicity studies

Medicines R&D

Non-clinical toxicity studies investigate the safety profile of a medicine. Candidate compounds must undergo many different toxicity studies before they are first administered in clinical trials or receive marketing...

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