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Medicines regulation in Europe

Medicines regulation is the basis for ensuring that only medicines of a high quality are marketed. In Europe, the European Commission proposes high-level legislation in the form of regulations...

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Patients Involved – An ultra orphan disease

A collaboration of Genzyme, International Pompe Association (IPA); UK, Dutch, and US Pompe patient organisations, Erasmus Medical Center and Duke University to establish appropriate measures to ensure the data...

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Webinar: Registries

Note: This webinar took place on 8 February 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction A patient...

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Medical devices

Medical devices are articles or instruments used in disease prevention, diagnosis, or treatment. Medical devices range in form and function, ranging for instance from inhalers to pacemakers to magnetic...

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