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Patients Involved – Clinical trial design

An example of patients involved through patients and patient organisations providing input into a Cushing’s disease clinical trial design. The consultation took place between Novartis and nurses from different teams...

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Clinical Trial Approval in Europe

To obtain clinical trial approval, a Clinical Trial Application must be submitted to regulatory bodies and a Research Ethics Committee who review the protocol and gives a positive or...

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Patient Engagement Agreements explained

For collaborations between the patient community and stakeholders in the health care system. 1. Introduction PARADIGM (Patients active in research and dialogues for an improved generation of medicines) was...

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Patients Involved – Ovarian Cancer

Introduction An example of patient involvement looking at a case report on Phase III patient involvement in an advisory board comprising six expert GYN oncology nurses from across Europe...

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Interview with Dániel Végh

Transcription My name is Dániel Végh. I’m coming from Hungary and I’m here to represent patients with diabetes from Hungary, but also Europe and global. My role is...

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Interview with Souzi Makri

Transcription My name is Souzi Makri, I come from Cyprus. I’m an expert patient, I’m involved with the Cyprus League Against Rheumatism. I’m a member of the board,...

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