Transcription My name is Tetiana Zamorska, I’m coming from Ukraine. I live in the capitol of Ukraine, Kiev. My son was born with a rare skin disorder called,...
A falsified medicine is a fake that passes itself off as a real, authorised medicine but contains poor quality or falsified ingredients, no ingredients or in the wrong dose...
Introduction Involvement of European Tuberous Sclerosis Complex Patient Organisations (E-TSC) establishing an European registry of patients living with Tuberous sclerosis complex (TSC) to address some gaps in understanding the...
Background/Rationale for the document This tool provides recommendations on the competencies (understood as knowledge, skills and behaviours) and resources that each stakeholder organisation should aspire to have in place...
Transcription My name is Dániel Végh. I’m coming from Hungary and I’m here to represent patients with diabetes from Hungary, but also Europe and global. My role is...
[glossary_exclude]There are vaccines to prevent infectious diseases caused by bacteria (such as pertussis, pneumococcal), viruses (such as measles, mumps, rubella,…
Transcription Hello, my name is Victoria Thomas and I’m the head of public involvement at organisation called the National Institute for Health and Care Excellence, also known as...
Introduction Development of a cure/treatment for Duchenne, by the Duchenne Parent Project in collaboration with Leiden University and Prosensa (Biotech partner) – GSK. Description of the case Development of...
Digital transformation is the integration of digital technologies into all parts of a business, radically changing how to operate and offer value to consumers. The digital transformation in the...
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