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Moving beyond patient to public involvement in HTA

Medicines R&D

In this video, three patient advocates discuss the merits of public involvement in HTA.

Basics of Early Clinical Development

Medicines R&D

Early Clinical Development refers generally to the first studies of a medicine in humans – typically known as Phase I and Phase II trials. Studies in early clinical development...

Safety communication

Medicines R&D

Safety communication is put in place to communicate adverse reactions or any safety findings to regulators, healthcare providers and patients. Safety communications are provided by marketing authorisation holders and...

Webinar: Experience with Patient Involvement in HTA Processes

Medicines R&D

Note: This webinar took place on 26 September 2017. You can find a video recording and the presentations used during the webinar below. Webinar introduction Increasingly, patient advocates take part in...

Reporting and Dissemination of Patient Engagement Activities

Patient Engagement

Guidance for Reporting and Dissemination of Patient Engagement Activities Background/Rationale for the document The complete and reliable reporting and dissemination of all patient engagement (PE) activities is essential...

Patients Involved – DevelopAKUre for AKU

Patient Engagement

Introduction An example of public-private partnership from diverse international groups in industry (Sobi), patient organisations (AKU Society and ALCAP), hospitals (Royal Liverpool, Hospital Necker, and National Institute of Rheumatic...

Patients Involved – Patient medication labeling (USA)

Patient Engagement

Introduction Collaboration between patient advocates with academic institutions (Northwestern University and Emory University) and a pharmaceutical company Merck (Health Literacy and Healthcare Disparities Strategy group) to obtain a simplified...

Interview with Jan Geissler

Patient Engagement

Transcription My name is Jan Geissler. I’m a patient advocate now for fifteen years. I’ve been diagnosed with chronic myeloid leukemia in 2001. At that time, diagnosis really...

Why Patients’ Voices Matter – Documentary

Patient Engagement

Discover why patients’ voices matter by following David, Dimitrios, and Jan and how they have a voice in medicines R&D. How can EUPATI play a role to help patient...

Stratified versus personalised medicine

Medicines R&D

The term 'personalised medicine' includes both stratification and personalisation, which are often incorrectly used as synonyms. However, the two are different, as explained further below.

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