Transcription My name is Nancy Hamilton. Right now, I am the training manager at EURORDIS, which is the European Organisation for Rare Diseases. I organise what we call...
Transcription My name is Pauline Kitchiner, and I work at GSK’s Clinical Unit in Cambridge. Which is a purpose built clinical unit to conduct phase one or phase...
Transcription My name is Tamás Bereczky, I come from Budapest, Hungary. I have been working with EUPATI as a patient representative or the representative of a patient organisation,...
Introduction Patients were asked by GlaxoSmithKline staff members to review a draft plain language summary from a completed Phase III study. The patients provided valuable feedback about the wording,...
Introduction A collaboration of the Patient Consumer Group [part of National Research Institute for Health Research (NIHR), Clinical Research Network] with the pharmaceutical company Eli Lilly. Where in the...
Introduction A Patient Input Forum organised by Merck & Co to expose the company’s workforce to patients and caregivers and hear their perspective on living with Alzheimer’s disease. Where...
Introduction Collaboration between patient advocates with academic institutions (Northwestern University and Emory University) and a pharmaceutical company Merck (Health Literacy and Healthcare Disparities Strategy group) to obtain a simplified...
Introduction Involvement of the charitable foundation ‘Children with SMA’ (spinal muscular atrophy) to establish contact with the academic institution ‘Institute of Neurology, Psychiatry and Narcology of NAMS Ukraine’ to...
Introduction A Polish breast cancer patient’s organisation contacted Novartis for information on conducted clinical trials with the aim to publish the information in their site. Investigators were informed and...
Introduction A collaboration of the CML Advocates Network / Leukaemia Patient Advocates Foundation with a major pharmaceutical company regarding the use of a medicine in Phase III trials (adult...
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