Today you will see our patient involvement report on successful patient involvement, make sure you have a read. In the coming weeks we shall share patient...
Overarching principles for patient involvement throughout the medicines research and development process The European Patients’ Academy (EUPATI) is a pan-European Innovative Medicines Initiative (IMI) project...
Introduction An example of patient’s own experience of being used as an interface between sponsors and participants of clinical trials. Taking place both in rare...
Introduction Novartis Advisory Board meets with six National Psoriasis Patient Organisations to address patient relevant endpoints in psoriasis clinical trials. Where in the process? –...
Introduction A collaboration of Genzyme, International Pompe Association (IPA); UK, Dutch, and US Pompe patient organisations, Erasmus Medical Center and Duke University to establish appropriate...
Raising Awareness on Managing Competing Interests in a Multi-Stakeholder Environment: Guidance to Patients and Engaging Stakeholders – download the guidance below Background/Rationale for the document...
Code of Conduct for all stakeholders involved in patient engagement activities within medicines development. Background/Rationale There is no European or international legislation defining the rules...
Working with Community Advisory Boards: Guidance and tools for patient communities and pharmaceutical companies Background/Rationale for the document Community Advisory Boards (CABs) can improve research...
Patient Engagement in Early Dialogues: Tools and resources for HTA bodies Background/Rationale Early Dialogues with regulators and health technology assessment (HTA) bodies are a well-established...
