Introduction A case report on patients recruited by Janssen R&D in a program constructed for the EATG members. Afterwards, the course was handed over for further capacity building within...
Traditionally, health data has been generated by documenting patients’ records (i.e. clinicians’ notes, lab results, prescriptions etc.) in a paper-based system. However, this system has several challenges such as...
Transcription My name is Dimitrios Athanasiou. I am a parent of a child with Duchenne muscular dystrophy. I am a full-time patient advocate for Duchenne and rare diseases,...
Once medicines have been administered and carried to the target by the bloodstream, their active ingredients interact with cells and in different ways, either by stimulating or inhibiting cellular...
Gene therapy is a way of restoring the function in cells where genes are missing or not working properly. It is a highly experimental technique, but has shown promise...
Herbal medicines are based on extracts from plants or parts of plants that have healing properties. They have been used for hundreds of years and can be seen as...
Introduction An example of patient’s own experience of being used as an interface between sponsors and participants of clinical trials. Taking place both in rare diseases with EURORDIS and...
Risk communication is a two-way exchange of information on the risks and benefits of a medicine. Patients, companies, and health authorities all have important roles to play in risk...
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