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Patients Involved – Phase III Hepatitis C

Introduction This is a collaboration between Bristol-Myers Squibb (BMS) with FUNDHEPA (patient organisation) to give more patients the opportunity to receive an innovative treatment for Hepatitis C through the...

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Community Advisory Boards

Working with Community Advisory Boards: Guidance and tools for patient communities and pharmaceutical companies Background/Rationale for the document Community Advisory Boards (CABs) can improve research by providing direct and...

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Introduction to Medical Devices

There are currently over 500.000 types of Medical Devices and in vitro diagnostic medical devices (IVDs) on the EU market [1]. Surgical techniques and Medical Devices may seem...

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Webinar: Community Advisory Boards

Note: This webinar took place on 28 June 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction Community advisory boards (CAB) are an...

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Interview with Joan Jordan

Transcription Hello. My name is Joan Jordan. I’m from Ireland. I’ve been … Well, I’ve become a patient advocate since I got diagnosed with relapsing-remitting multiple sclerosis in...

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Interview with François Houÿez

Transcription I’m François. I’m 51. I work for the European organisation for rare disease EURORDIS, where my main role is to help patients navigating through the different procedures for...

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