Background/Rationale for the document This tool provides recommendations on the competencies (understood as knowledge, skills and behaviours) and resources that each stakeholder organisation should aspire to have in place...
For collaborations between the patient community and stakeholders in the health care system. 1. Introduction PARADIGM (Patients active in research and dialogues for an improved generation of medicines) was...
Patient engagement in medicines development: Recommendations on how to find the right match for the right patient engagement activity. Background/Rationale for the document During the analysis of existing practices...
Code of Conduct for all stakeholders involved in patient engagement activities within medicines development. Background/Rationale There is no European or international legislation defining the rules for patient engagement in...
Working with Community Advisory Boards: Guidance and tools for patient communities and pharmaceutical companies Background/Rationale for the document Community Advisory Boards (CABs) can improve research by providing direct and...
Patient Engagement in Early Dialogues: Tools and resources for HTA bodies Background/Rationale Early Dialogues with regulators and health technology assessment (HTA) bodies are a well-established processes in which medicines...
Access here the original research paper. Background/Rationale for the document: Capturing the ‘return on engagement’ is complex, given the many factors that influence the impact of patient engagement. This Patient Engagement...
Guidance for Reporting and Dissemination of Patient Engagement Activities Background/Rationale for the document The complete and reliable reporting and dissemination of all patient engagement (PE) activities is essential...
Raising Awareness on Managing Competing Interests in a Multi-Stakeholder Environment: Guidance to Patients and Engaging Stakeholders – download the guidance below Background/Rationale for the document Managing competing interests and...
Today you will see our patient involvement report on successful patient involvement, make sure you have a read. In the coming weeks we shall share patient involvement reports on trials and...
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