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Interview with Gilliosa Spurrier

Transcription I’m Gilli Spurrier-Bernard. I am a patient advocate because my husband is a stage 4 melanoma patient. As a patient advocate I initiated...

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Interview with Jan Geissler

Transcription My name is Jan Geissler. I’m a patient advocate now for fifteen years. I’ve been diagnosed with chronic myeloid leukemia in 2001. At...

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Interview with François Houÿez

Transcription I’m François. I’m 51. I work for the European organisation for rare disease EURORDIS, where my main role is to help patients navigating through...

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Interview with Karen Facey

Transcription My name is Karen Facey. I am a statistician by training. I’ve worked in drug development, medicines regulation and health technology assessment. Since...

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Interview with Joan Jordan

Transcription Hello. My name is Joan Jordan. I’m from Ireland. I’ve been … Well, I’ve become a patient advocate since I got diagnosed with...

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Patients Involved – Psoriasis

Introduction Collaboration between patients and a Psoriasis Association representative with the ‘Focus on the Patient’ division from GSK, to understand the impact of psoriasis on...

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Interview with Claas Röhl

Transcription My name is Claas Röhl. I’m from Vienna, Austria. Two and a half years ago, I founded the patient organisation NF Kinder, and we...

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