Introduction A case report on trained medical anthropologists shadowing people with sickle cell disease(SCD), to gain new insights into the world of what it’s like to live with the...
Introduction A patients involved case report of patient advocacy in HIV DUET Phase III trials for a novel treatment regime using a combination of two investigational compounds: TMC125 (etravirine)...
Introduction A case report on patients recruited by Janssen R&D in a program constructed for the EATG members. Afterwards, the course was handed over for further capacity building within...
Introduction An R&D collaboration between the European AIDS Treatment Group, European Liver Patients Association, Treatment Action Group, and Janssen R&D. Description of the case Patients were involved as follows:...
Introduction A patients involved case report of patient feedback improving an informed consent form. UCB employees consulted patients with epilepsy and rheumatoid arthritis to make the form simpler and...
Introduction Partners from Ethic Committees (National Commission of Ethic Committees – CNCP), patient associations, and investigating centres worked in a writer’s guide of five recommendations and six rules for...
Introduction Expert melanoma nurses and advocacy group experts held a Melanoma board meeting to explore perceptions about novel treatments and scientific developments in the management of melanoma. Description of...
Introduction An example of patient involvement looking at a case report on Phase III patient involvement in an advisory board comprising six expert GYN oncology nurses from across Europe...
Introduction A case report on the inclusion of a patient expert on a pharmaceutical company’s external Bioethics Advisory Panel. The patient expert was proposed to the existing panel so...
Introduction Development of a cure/treatment for Duchenne, by the Duchenne Parent Project in collaboration with Leiden University and Prosensa (Biotech partner) – GSK. Description of the case Development of...
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