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Patients Involved – Patient sounding board

Introduction Collaboration between the International Alliance of Patient’s Organisations and local patient organisations with pharmaceutical company Novo Nordisk A/S to facilitate dialogue between them and develop learnings for future...

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Patients Involved – Phase III Hepatitis C

Introduction This is a collaboration between Bristol-Myers Squibb (BMS) with FUNDHEPA (patient organisation) to give more patients the opportunity to receive an innovative treatment for Hepatitis C through the...

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Interview with Dániel Végh

Transcription My name is Dániel Végh. I’m coming from Hungary and I’m here to represent patients with diabetes from Hungary, but also Europe and global. My role is...

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Interview with Dimitrios Athanasiou

Transcription My name is Dimitrios Athanasiou. I am a parent of a child with Duchenne muscular dystrophy. I am a full-time patient advocate for Duchenne and rare diseases,...

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Interview with Dominique Hamerlijnck

Transcription I’m Dominique Hamerlijnck. I’m one of the patient advocates from the Dutch Lung Foundation. We do quite a lot of different projects, and usually it goes two...

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Interview with Diego Villalón

Transcription Well, my name is Diego, Diego Villalón, I had lymphoma when I was 23 and since then I’ve been involved in patient… In different patients organisations. Two...

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Interview with Victoria Fonsou

Transcription I am a Victoria Fonsou, from Greece. I am a breast cancer patient and also a caregiver of my father, who has just been diagnosed with colon...

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Interview with Victoria Thomas

Transcription Hello, my name is Victoria Thomas and I’m the head of public involvement at organisation called the National Institute for Health and Care Excellence, also known as...

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Interview with Tetiana Zamorska

Transcription My name is Tetiana Zamorska, I’m coming from Ukraine. I live in the capitol of Ukraine, Kiev. My son was born with a rare skin disorder called,...

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