Introduction Collaboration between patient advocates with academic institutions (Northwestern University and Emory University) and a pharmaceutical company Merck (Health Literacy and Healthcare Disparities Strategy group) to obtain a simplified...
Introduction Collaboration between the International Alliance of Patient’s Organisations and local patient organisations with pharmaceutical company Novo Nordisk A/S to facilitate dialogue between them and develop learnings for future...
Code of Conduct for all stakeholders involved in patient engagement activities within medicines development. Background/Rationale There is no European or international legislation defining the rules for patient engagement in...
Paediatric medicine development requires careful planning and decision making. Legislation in the EU mandates that paediatric medicine development should occur early in the medicine development process.
Transcription So my name is Virginie Hivert, I’m working for EURORDIS, the European organisation for rare disease patients. I’m the Therapeutic Development Director, and so I’m a patient...
‘Within-trial decisions’ are decisions made once a clinical trial has already begun, for instance if an unexpected problem comes to light. This article looks at two specific kinds of...
Human medical research is conducted according to strict principles of ethics. These principles have been developed over time, in reaction to various events in human history, and continue to...
Note: This webinar took place on 8 February 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction A patient registry is an organised...
Transcription My name is Claas Röhl. I’m from Vienna, Austria. Two and a half years ago, I founded the patient organisation NF Kinder, and we fight for people who...
