HTA bodies carry out clinical effectiveness assessments, in which new technologies are compared with the standard of care and other existing treatments.
Phase I trials are usually the first studies of a medicine conducted in humans – known as ‘first-in-human’ (also known as first-in-man) trials. They are typically human pharmacology studiest,...
Note: This webinar took place on 29 October 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction Amongst other profound changes and consequences,...
Part of a different era, activist or patient advocate? I started in patient advocacy in 1991. We didn’t call it patient advocacy back then. We got buckets of glue...
Introduction A case report on trained medical anthropologists shadowing people with sickle cell disease(SCD), to gain new insights into the world of what it’s like to live with the...
Published and available for citation: Haerry D, Landgraf C, Warner K, Hunter A, Klingmann I, May M and See W (2018) EUPATI and Patients in Medicines Research and Development: Guidance...
Transcription My name is Klaartje Spijkers. I’m from the Netherlands. I’m a mother of a young boy with the Duchenne muscular dystrophy which is a progressive muscular disorder....
Traditionally, health data has been generated by documenting patients’ records (i.e. clinicians’ notes, lab results, prescriptions etc.) in a paper-based system. However, this system has several challenges such as...
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