Ethical PrinciplesEthical principles exist both to protect the research participants and to ensure the integrity of the research. There are various codes and regulations which guide ethical research today, including the Declaration of Helsinki, although a number of common principles exist.The World Medical(...)
Ethics CommitteeAn Ethics Committee is an independent body made up of a range of individuals including medical or scientific professionals and non-medical or non-scientific members (e.g. patients or lay members). An Ethics Committee may operate within an institution, or it may be national, or supranational or(...)
ECAn Ethics Committee is an independent body made up of a range of individuals including medical or scientific professionals and non-medical or non-scientific members (e.g. patients or lay members). An Ethics Committee may operate within an institution, or it may be national, or supranational or(...)
EU RegulationA regulation is a written rule or law. European regulations are binding legislative acts. They must be applied in their entirety across the EU simultaneously from the date agreed. Regulations can be distinguished from European directives which are legislative acts that set out a goal that all(...)
EUnetHTAThe European network for Health Technology Assessment was established to create a network for HTA across Europe, developing a framework (HTA Core Model®) by which a technology (for example a new medicine) can be assessed. It facilitates efficient use of resources, creating a sustainable system(...)
EuroBioBankThe EuroBioBank network is the first operating network of biobanks in Europe providing human DNA, cell, and tissue samples as a service to the scientific community conducting research on rare diseases. It was established by patients and researchers.
A biobank is a large, organised collection of(...)
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