Authors: Oyiza Momoh, Susan W. Burriss, Anya Harry, Kay Warner The importance of inclusion and diversity in clinical trials It is important that people participating in clinical trials...
Note: This webinar took place on 29 October 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction Amongst other profound changes and consequences,...
Note: This webinar took place on 28 June 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction Community advisory boards (CAB) are an...
Note: This webinar took place on 8 February 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction A patient registry is an organised...
A collaboration of a patient organisation with a pharmaceutical company that resulted in a major revision of the Informed Consent document and of the child and adolescent assent forms.
Novo-Nordisk, a pharmaceutical company, does user research with patients to enhance understanding of patients and to develop products that meet users’ needs.
A Patient Input Forum organised by Merck & Co to expose the company’s workforce to patients and caregivers and hear their perspective on living with Alzheimer’s disease.
A case of patient involvement into Phase I study design through sharing their views on the disease. The information helped the researchers to progress with designing a clinical trial.
Collaboration between patient advocates with academic institutions (Northwestern University and Emory University) and a pharmaceutical company Merck (Health Literacy and Healthcare Disparities Strategy group) to obtain a simplified label...
It is important to have information reachable for patient's organisations, so they can publish it using their tools and making it more accessible for patients.
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