European Patients’ Academy on Therapeutic Innovation [EUPATI]

Stratified and personalised medicine involves tailoring treatments towards a specific group of patients or to individuals.

In this video, three patient advocates share their experience and the experience of their organisations in being involved in HTA processes.

The power of the patient voice is phenomenal, and inspires, motivates, informs, challenges and advises us during our awareness seminars. It may sound simple – share your experience and raise awareness; however the patient voice goes far beyond story-telling. Many patients reveal the challenges they have faced getting a proper diagnosis, what taking medicines is like, how it is to be a clinical trial participant, the hurdles of getting access to medicines, the side effects of treatment, remembering to a take their medicine(s), their unmet needs and what they’d like to see from future medicines and research.