European Patients’ Academy on Therapeutic Innovation [EUPATI]« Back to Glossary Index
European Patients’ Academy on Therapeutic Innovation (EUPATI) https://eupati.eu/“
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- Patient involvement reports – Why they matterThere are countless possibilities and opportunities for patients to become involved, even if it takes a lot of time and effort!
- Webinar: Early collaboration - a recipe for solutions: drug development and treatment strategies may go hand in hand.How early in the development of a new medicine should thEarly collaboration - a recipe for solutions: drug development and treatment strategies may go hand in hand.e discussion between researchers and patients occur? Can such early strategic interaction really maximize the value of the outcome? In this EUPATI webinar, a pharmaceutical industry researcher and a patient expert will present two cases describing the research questions, their interaction and the outcome of this early collaboration. Join us in listening and discussing two very interesting experiences of successful patient involvement in the development of new medicines.
- Webinar: Strengthening patient involvement in Health Technology Assessment (HTA)HTA is a multidisciplinary process that examines the information about medical, cost-effectiveness, social, political, legal and ethical considerations of the application of a health technology – usually a medicine, medical device or clinical/surgical procedure. The main purpose of conducting an assessment is to inform policy decision making, which has an impact on patients and their ecosystem of health, including physicians and payers.The webinar will examine the need for patient involvement in HTA and look at the HTA landscape in Europe. A patient organisation representative will present a case study on patient participation in HTA, and the conversation will also look at how the EUPATI toolkit can help informed patients engage in HTA.
- Patients Involved - DevelopAKUre for AKUAn example of public-private partnership (DevelopAKUre) from diverse international groups in industry (Sobi), patient organisations (AKU Society and ALCAP), hospitals (Royal Liverpool, Hospital Necker, and National Institute of Rheumatic Diseases), Academia (Universities of Liverpool and Siena, Institute of Molecular Physiology and Genetics) and Small and Medium Enterprises –SME– (Nordic Bioscience, PSR and Cudos) to cure alkaptonuria (AKU).
- Mini-course starter kit - Setting Research PrioritiesThe starter kits provide you with links to relevant background reading in the toolbox and associated PowerPoint slide decks and media in order to prepare a single or multi-day training on patient involvement in setting research priorities.