Seventh Framework Programme for Research and Technological Development (European Commission) [FP7]

An example of public-private partnership (DevelopAKUre) from diverse international groups in industry (Sobi), patient organisations (AKU Society and ALCAP), hospitals (Royal Liverpool, Hospital Necker, and National Institute of Rheumatic Diseases), Academia (Universities of Liverpool and Siena, Institute of Molecular Physiology and Genetics) and Small and Medium Enterprises –SME– (Nordic Bioscience, PSR and Cudos) to cure alkaptonuria (AKU).

The European Patients’ Academy (EUPATI) guidance document on patient involvement in industry-led medicines R&D aims to support the integration of patient involvement across the entire process.

The European Patients’ Academy (EUPATI) guidance document on patient involvement in regulatory processes aims to support the integration of patient involvement across the entire process.

The European Patients’ Academy (EUPATI) guidance document on patient involvement in ethical review aims to support the integration of patient involvement across the entire process.

The European Patients’ Academy (EUPATI) guidance document on patient involvement in HTA aims to support the integration of patient involvement across the entire process.